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PDF | Background: Duchenne and Becker muscular dystrophies, collectively referred to as dystrophinopathies, are recessive X-linked disorders | Find, read and cite all the research you need on ResearchGate
PDF) Impact of Raising Children with Rare Diseases on Parental Quality of Life and Family Functioning
Frontiers Predictors of overload in parents of children with neuromuscular diseases
Understanding adaptability in the family environment in facing COVID-19: A review - ScienceDirect
PDF) A Review of MD STAR net 's Research Contributions to Pediatric-Onset Dystrophinopathy in the United States; 2002-2017
Perceived quality of life among caregivers of children with a childhood-onset dystrophinopathy: a double ABCX model of caregiver stressors and perceived resources
Theoretic model of psychosocial and biological risk factors of
PDF) Comparing the Effectiveness of Parenting Education Based on the Double ABCX Model and Compassion-Based Parenting on the Mother-Child Relationship and Behavioral Problems of Children with Intellectual and Developmental Disabilities
PDF) Perceived quality of life among caregivers of children with a childhood -onset dystrophinopathy: A double ABCX model of caregiver stressors and perceived resources
PDF) Perceived quality of life among caregivers of children with a
A Review of MD STARnet's Research Contributions to Pediatric-Onset Dystrophinopathy in the United States; 2002-2017 - Kashika M. Sahay, Tiffany Smith, Kristin M. Conway, Paul A. Romitti, Molly M. Lamb, Jennifer Andrews
Caregiving process and caregiver burden: Conceptual models to guide research and practice, BMC Pediatrics
Frontiers Predictors of overload in parents of children with neuromuscular diseases
Quality of Life Among Caregivers of a Vulnerable Population Living with HIV: Caregiving and Relationship Factors
Characterizing the dimensional structure of early-life adversity in the Adolescent Brain Cognitive Development (ABCD) Study - ScienceDirect